Caught in a NET? Help your doctor help you!

We could have the best doctor, the perfect notes and the most amazing pitch in the world, but if our team doesn’t have our medical records, they won’t have the tools to help us. Doctors have a wealth of knowledge, but without our records they can’t help us how we need to be helped.

What does my doctor need from me?

A clearly presented history– Our doctor must be able to easily read our medical history. Your medical records may be collected from the hospitals and offices you’ve visited. This step may take some time, because you will include all the most important data in this booklet. Once completed send it to your doctor via email and bring a hard copy of it to your next appointment.

  • When writing this booklet detail your medical history in chronological order
  • What are some of the signs and symptoms of your disease? How long are they present (duration)? What degree of discomfort do they cause? How frequent do they manifest?
  • What factors cause these signs and symptoms to trigger, amplify, reduce. Have you discovered anything that suppresses these experiences and if so what are they?

A detailed pathology report– When sending your medical history to your doctor they will also need your pathology reports. Be sure to send all of the following:

  •                What was the location of the primary metastasis?
  •                How differentiated are the tumor/s?
  •                What is the grade of the tumor/s?
  •                Be sure to send the % of Ki-67 & Mitotic rate.

Make the most of these moments– While organizing this information take some time to read it. If you see something you don’t understand write it down and look it up. The best way we can learn about our disease is to discover how it personally affects us.


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NCAN

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