Discovering Personal Advocacy
Hope is the corner stone of personal advocacy. To find her we must fantasize about the world, embrace the thought of adventure and share our dreams with others. From this spark we will explore our creativity through artistic expression, connecting our soul parts with our body and mind. Creativity gives way to imagination, the ability to see something that does not exist and manifest it within reality. Once we can imagine ourselves as the person we want to be, all we have to do is make it a reality. Hope is the faith we can achieve this reality.
Critical thought entails the usage of empathy, insight and research. We will learn to explore the perceptions and realities of others, avoid pseudoscience and become effective researchers. This is an important component in personal advocacy because it gives us the knowledge to have power over our lives.
Force of will is the quality of pushing forward despite our obstacles and hardships. It is our willpower, forward momentum and determination. It is living with significance, purpose and drive. Force of will sprouts from Hope, it grows with critical thought and blossoms when we give purpose to the pain.
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Where am I am today? I am in a I fucking hate this life kind of mood. I feel like utter shit! I am tired of feeling this way. I can’t feel my fingers and toes, earlier I couldn’t feel my face. I am stressed beyond imagination and I feel like all of my hopes and dreams have been stolen from me. I feel robbed. I feel like I am living in this shell of a body, I am so angry. I try and I push and I do my best to make the best of every moment. Times like these, times like these long moments I despise the cards that have been dealt to me. It fucking sucks, there is no other way to describe it.
Becoming your own advocate means you must learn how to critically research and develop critical thinking skills. I consider personal advocacy to be an inner boundary (something I will discuss later).
Being your own Advocate means you must be a leader. You have the break the mold of putting your life into the hands of strangers you know nothing about. These people should be working for you and not the other way around.
We should be interviewing these people, they should be earning our trust, we are their boss, there should be no point in our treatment plan that they are our boss. They are the people we are using to get a service done, if their ego or inability gets in the way of achieving your goals then they are failing in the duties they were hired for. When this happens it is time for you to fire them.
If you hired someone to fix your motor vehicle would you hire them again if they failed to fix the part you paid them to repair? Would you hire them again if they refused to follow your instructions? No, of course you wouldn’t, so why are we shelling out thousands and thousands of dollars to health care professionals who are not meeting or exceeding our expectations.
Something has got to change and the only way I can see that change happening is if we have a greater understanding of our care. If we take charge of our treatment plan and learn how to say NO, we can become a true advocate for our own health. We have to be our own advocate. This WE is more than just cancer patients, this is everyone. Everyone has to be made aware of how to demand the service they deserve because they are paying for it, the service they deserve because they are a human being.
What does this mean, what does that mean, these are questions I found myself asking along the way. Often I would see lists of abbreviations and acronyms that represented critical bits of information that did not exist within my vernacular. There is so much information in the medical world, it is easy for anyone to get lost in its sea of vast knowledge.
This series focuses on the abbreviations, acronyms and terms found on the different documents we see through our cancer journey. This series is less entertaining and more informative, each post will have the subject matter after the part number in parenthesis. My goal is to provide a comprehensive and easy to locate list to help you understand the difficult road ahead of you.
I want to leave off saying that I am not a doctor or a physician. These definitions and explanations reflect my own personal research on the topic. You should consult your health care provider when deciding your medical needs. My goal is to give you some frame work to help facilitate those conversations.
The power of this fatigue is incredible. I have never felt so exhausted in my life. The draining energy sensation is felt all the way to the center of my bones.
In these moments when all there is, is that one sensation, I do my best to become one with it. There is no sense in fighting something I cannot stop.
To fight the sensation is to squander the potential of the experience. It doesn’t make it any easier, it simply shows value to a moment I might have otherwise not saw.
Shawn White Blog
Living with Cancer
I start my next round of fancy chemo therapy tomorrow. Some would describe it as flying though the air while sitting in a snazzy chair with fish hook shaped needle in your chest.
It is my long day, so perhaps I will post a silly picture of me with my new dew.
Partying at the ER with my lovely.
No hats here, but plenty of fun time tickets available!